Meme!

Hey Y'all - Happy Sunday (: I hope everyone had a good weekend and that the work-week ahead will go by fast! Last week inched by so slowly, I was just waiting for the weekend to be able to rest - and then of course, my weekend ended up being so packed that I didn't get any relaxation time at all! *sigh* just waiting for next weekend now. Maybe then I can get some decent sleep in.

I'm starting to think I should start to use my CPAP regularly again...
Nahh!

So anyways, I have a bit of a treat for y'all :) I've seen these "how it really is" memes floating around lately, so I decided to make one for EDS. Let me know if you find it accurate for you - of course this is just how I see it - leave me some comments! Tell me if you like it! And feel free to re-post:

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So a couple more things on the agenda: (1) spreading the love for the video my friend made about EDS, and (2) my stupid lungs!

Firstly - I must give a shout out to a fellow teen EDSer, Alexandra Coleman, who made this Ehlers-Danlos Awareness video. She got some photos and quotes from teens with EDS. (one of the photos is me! :) heyy!) So, spread the love and such. Here that is:

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Alright, and lastly - I have a question for all you fellow EDSers who might have experience with lung problems! I've been having issues with my lungs for quite a while now and my docs haven't been able to figure out what's goin on. For a while they just labeled it as "asthma" because they didn't know what else to label it. But they seriously doubt that it's asthma, and I want some actual answers! They've been prescribing daily inhaled steroids that have been helping, (flovent to qvar, now to pulmicort)...but those are prescribed for all kinds of lung problems all the time, so that doesn't mean that it's asthma... yet the rescue inhaler they gave me (with albuterol in it) which is used just for asthma I believe, NEVER works, and I've still ended up in the hospital more than once, without it helping at all in an emergency.

So anyways - I'd like to know what's wrong with my lungs exactly (I mean I know it's because of the EDS but what exactly is this seperate condition called, because even the asthma specialist I went to doesn't think it's asthma?) and what have you done that has helped at all? I wanna breathe again!

Thanks loveys! We'll chat again soon :)

<3